Extended Diagnosis File
| Column Name | Type | Format / Value Checks | Additional Comments | ||||||||
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| ind_id | string |
Checks: Must match exactly with Subject Code submitted to Sampled (formerly IBX). Field is a required field and cannot be left empty. |
Definition: The unique individual id submitted to Sampled (formerly IBX) with the biospecimen. Comments: IMPORTANT —This id is used to verify subject \ NRGR_BIO_ID pairs at Sampled (formerly IBX). Therefore, the id you submit here should match exactly the subject-code submitted to Sampled (formerly IBX). |
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| dx_rank | integer |
Valid Values: Integer 1 or greater. Checks: Field is a required field and cannot be left empty. |
Definition: Since an individual may have several rows with diagnostic codes, this column ranks the diagnosis by order of importance. The most important diagnosis should have the value 1, the second most important the value 2, and so on in order of decreasing importance. Several diagnosis at the same rank are allowed. Sample value: 1 |
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| dx_study | string |
Valid Values: A diagnostic code values from the DSM or an approved diagnostic system. Checks: Field is a required field and cannot be left empty. |
Definition: Investigator-provided specific diagnosis in a given diagnostic system. Sample value: 295.70 Comments: dx codes in this file should use a standard dx_system, see valid values and linked code sets below. |
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| dx_system | string(15) |
Valid Values: DSM3R=Diagnostic and Statistical Manual of Mental Disorders, 3rd Edition, Revision (DSM-III-R) NRGR_DSM3R=Supplemental codes for DSM3R, curated by NRGR DSM4=Diagnostic and Statistical Manual of Mental Disorders, 4th Edition & 4th Edition, Text Revision NRGR_DSM4=Supplemental codes for DSM4, curated by NRGR DSM5_ICD9=Diagnostic and Statistical Manual of Mental Disorders, 5th Edition. International Statistical Classification of Diseases and Related Health Problems, 9th Revision NRGR_DSM5_ICD9=Supplemental codes for DSM5-ICD9, curated by NRGR DSM5_ICD10=Diagnostic and Statistical Manual of Mental Disorders, 5th Edition. International Statistical Classification of Disease and Related Health Problems, 10th Revision NRGR_DSM5_ICD10=Supplemental codes for DSM5-ICD9, curated by NRGR RDC=Research Diagnostic Criteria Codes MRDC=Modified Research Diagnostic Criteria Codes SS=Study Specific. If study specific, please provide dx definitions and descriptions in the "Diagnosis File (_Dx)" |
Definition: diagnostic system for specific diagnosis Sample value: SS Comments: dx codes in this file should use a standard dx_system, specified in the Notice of Grant Award. If you want to use diagnostic codes in a system other than those defined in the "values" column to the left, please submit a diagnosis data dictionary file (in Investigator-Defined Main Diagnosis (_dx) File format) to help@nrgr.on.spiceworks.com for approval. |
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| dx_confidence | integer |
Valid Values: 1=Unknown; diagnosis asserted but completeness of diagnosis and status of supporting information is unknown 2=Low; only some diagnostic criteria met 3=Medium; all criteria met, no supporting information 4=High; all criteria met and has supporting information Checks: Field is a required field and cannot be left empty. |
Definition: Confidence on the diagnosis in dx field Sample value: 4 |
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| dx_external_support | string(1) |
Valid Values: E=Diagnosis supported by external information I=Diagnosis supported by data submitted to repository Checks: Field is a required field and cannot be left empty. |
Definition: Diagnosis based on information that is not (or cannot be) submitted to the Center. This missing information overrules some information that was submitted to the Center. For example, medical records, interviews with family members, etc. Sample value: I |
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Submissions for Autism
Submissions for Other Disorders
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