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Tourette Syndrome

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Tourette Syndrome 1.9

The Tourette Syndrome (TS) Collection v1.9 was published on 2025-08-26. TS Distribution v1.9 includes 6886 subjects, 6245 of whom have at least one biosample on record at the repository. In addition to case/control studies, the Tourette Syndrome collection includes 1 family study.

Standard Data & Documentation

  • Distribution Bundle [ or ]: Standard files across disorders, containing demographic, diagnostic, and pedigree information. Sampled (formerly IBX) sample IDs (nrgr_bio_id) and consent level are also provided. Bundle includes data dictionaries.
  • Study Descriptions.
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Additional Data Files

Clinical Instruments

Other

  • Study 106 Phenotypic Data [ or ] Summary data: demographics and diagnoses
  • Study 106 Extended Diagnosis File [ or ]

Clinical Instruments

Other

  • Study 203 Extended Diagnosis File [ or ]
  • Study 203 TICgenDX Phen [ or ] Additional diagnostic and psychiatric screening data.
  • Study 203 TICquest1 Phen [ or ] Additional demographic, medical history, and family medical history data.
  • Study 203 TICquest2 Phen [ or ] Additional Yale Global Tic Severity Scale (YGTSS) data.
  • Study 203 TICquest3 Phen [ or ] Additional Yale-Brown Obsessive-Compulsive Scale (Y-BOCS) data.
  • Study 203 TICquest4 Phen [ or ] Additional Swanson, Nolan and Pelham Rating Scale (SNAP-IV); Strengths and Difficulties Questionnaire (SDQ); Autism Spectrum Quotient (AQ-10); medication; and birth and development data.

Clinical Instruments

Other

  • Study 233 Extended Diagnosis File [ or ]

Study 106 — Collaborative Genomic Studies of Tourette Disorder

  • Study 106 Phenotypic Data [ or ] Summary data: demographics and diagnoses
  • Study 106 Extended Diagnosis File [ or ]

Study 203 — Collaborative Genomic Studies of Tourette Disorder: Phase II

  • Study 203 Extended Diagnosis File [ or ]
  • Study 203 TICgenDX Phen [ or ] Additional diagnostic and psychiatric screening data.
  • Study 203 TICquest1 Phen [ or ] Additional demographic, medical history, and family medical history data.
  • Study 203 TICquest2 Phen [ or ] Additional Yale Global Tic Severity Scale (YGTSS) data.
  • Study 203 TICquest3 Phen [ or ] Additional Yale-Brown Obsessive-Compulsive Scale (Y-BOCS) data.
  • Study 203 TICquest4 Phen [ or ] Additional Swanson, Nolan and Pelham Rating Scale (SNAP-IV); Strengths and Difficulties Questionnaire (SDQ); Autism Spectrum Quotient (AQ-10); medication; and birth and development data.

Study 233 — Neurodevelopment of Tourette syndrome

  • Study 233 Extended Diagnosis File [ or ]